Support & Additional Information
When you have experienced a life-changing event and have been diagnosed with a medical condition, it is perfectly normal to need time to accept what has happened to you and come to terms with changes in your everyday life. Adjustment can be particularly difficult with a condition like SCAD, where many questions cannot yet be answered. The emotional and physical recovery period can take time. SCAD patients require support from clinicians, family members, and friends.
In addition to important steps such as cardiac rehab, the following resources can help the many stages of recovery from a SCAD and/or heart attack.
Mayo Clinic SCAD Webpage
You will find links to all of Mayo Clinic leading SCAD Research Program information on their webpage including contact information and participant information on their two research projects.
After reading the About page, don’t forget to click spontaneous coronary artery dissection for additional information from Mayo Clinic on SCAD-related topics such as symptoms, causes, risk factors, diagnosis and treatment options.
Medical professionals will want to check out the informative Medical Professionals page which also contains a concise review of advice for treating physicians.
You will also find interesting and informative videos. These videos include interviews of survivors, SCAD researchers as well as an illustration of SCAD.
Mayo Clinic SCAD Research Program under the leadership of Dr. Sharonne Hayes is innovative, multidisciplinary and collaborative. Its goal is to advance the understanding of the underlying causes and risk factors for SCAD as well as develop solutions for optimal diagnosis, treatment and prevention.
WomenHeart: The National Coalition for Women With Heart Disease
Provides online health and wellness communities for patients and caregivers. Click the Online Community link to get started. WomenHeart community maintains a dedicated Spontaneous Coronary Artery Dissection discussion topic.
SCAD Survivors on Facebook
A private support group exclusively for SCAD survivors with over 1125 survivors counting. If you are a survivor, click https://www.facebook.com/groups/SCADsupport/ to join.
SCAD Angels on Facebook
While most survive a SCAD, some do not. They leave behind families who become part of the SCAD community. SCAD Angels is a private support group exclusively for these families to provide a warm, supportive and safe space to share experiences and stories. If your family lost someone to SCAD click https://www.facebook.com/groups/SCADGriefSupport/ to join.
For additional information about SCAD Angels, visit In the News.
Mayo Clinic on Ehlers Danlos Syndrome
Fibromuscular dysplasia (FMD)
Fibromuscular Dysplasia Society of America
Mayo Clinic on Fibromuscular Dysplasia